Sorry for the lack of updates: The last two weeks have been great and we have taken advantage of that to recharge a little bit.
Clarisse if almost 100% back to her pre-op state: Speech is back, trunk is back and her arms are back. The last item we are working on is more fluid walking: given that she was lying down for the most part over the last 5 months, her feet are not used to the pressure of her weight anymore and her muscles need some training. But she has a great PT team working with her and making progress on a weekly basis. 2-3 more weeks and Clarisse should be fully recovered.
I am going to take some time and try to provide a summary post of the journey we went through over the last 5 months for parents who land on this page through a google search for Chorea or Post Pump Chorea but in a nutshell, there is hope!
Special thanks to all our friends for their continuous support.