Category Archives: Uncategorized

Week #3 of the recurrence

Like last time, things have been becoming progressively worse. We are reaching the point where talking is very very hard, holding her head straight is very hard, walking is very hard and chewing is very hard. But Clarisse is keeping … Continue reading

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Recurrence

We started seeing signes of involuntary movement last Sunday night. Things have gradually gotten worse since them. We met with the Neurology team on Friday. They do not have a clear understanding of what might be causing the recurrence: it … Continue reading

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Doing well

Clarisse is continuing to do well. She has completely recovered: No signs of Chorea over the last 18 months.   

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Continuing to do well…

Clarisse has continued to do well over the last 9 months. Here are a few pictures from her recent trip to France: We are feeling very lucky and enjoying every bit of it. If your child is diagnosed with Post … Continue reading

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“Tout est bien qui finit bien”

We have a saying in french which translates into “All’s well that ends well”. Clarisse is now back to her pre-op state. Here is a picture of her building a sand castle on the beach. Time to turn the page … Continue reading

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Almost there

Sorry for the lack of updates: The last two weeks have been great and we have taken advantage of that to recharge a little bit. Clarisse if almost 100% back to her pre-op state: Speech is back, trunk is back … Continue reading

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Movies

Clarisse continues to make progress in the right direction. Today, we went to the movies. Alphas and Omegas – 3D. Good practice for the left hand: She ate the full bag of popcorn on her own.

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